Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Cystic fibrosis is a genetic disease. People with CF have inherited two copies of the defective CF gene -- one copy from each parent. Both parents must have at least one copy of the defective gene.
People with only one copy of the defective CF gene are called carriers, but they do not have the disease.
The defective CF gene contains a slight abnormality called a mutation. There are more than 1,800 known mutations of the disease. Most genetic tests only screen for the most common CF mutations. Therefore, the test results may indicate a person who is a carrier of the CF gene is not a carrier
People with cystic fibrosis are at greater risk of getting lung infections because thick, sticky mucus builds up in their lungs, allowing germs to thrive and multiply. Lung infections, caused mostly by bacteria, are a serious and chronic problem for many people living with the disease. Minimizing contact with germs is a top concern for people with CF.
The type and severity of CF symptoms can differ widely from person to person. Therefore, although treatment plans can contain many of the same elements, they are tailored to each individual's unique circumstances.
People with CF need to work closely with their medical professionals and families to create individualized treatment plans.
The CF Foundation accredits more than 120 care centers that are staffed by dedicated healthcare professionals who provide expert CF care and specialized disease management.
The November 8, 2014 event raised $8,000 and had 100 runners/walkers. Our goal was $5,000 and at least 100 runners/walkers. This was a great first event and it has us excited to raise money for CF research.
The August 29, 2015 event reached two goals for Color Splash Dash. The first goal was that we raised over $12,000 dollars to go to CF research!! Way to go Stillwater. The second goal was that we had over 350 walkers!!! This was a great event, great color run and after there were lots of hot dogs and drinks, so people stayed at the event to eat lunch and visit. It was a great day with great people.
Our August 27, 2016 event we are hoping to raise $15,000 for CF research and have over 400 runner/walkers. Join us for a fun day and to support a great cause.
The dream of carrying on the tradition is in full force.
Event DirectorIn the last few years, since my grandson was diagnosed with CF, it has become my life long passion to be an advocate for CF. Not only for my grandson but for all the other CF families affected. Remember that " Money buys science and science buys lives" and together we will find a cure. Please help me meet my fundraising goal by making a donation.
Development ManagerI graduated from OSU in 2014 and have been with the Cystic Fibrosis Foundation - OKC Chapter since May 2015. It has been a joy to work with the families within our CF community and to advocate/fundraise in order to find a cure for our sweet friends living with CF. The Stillwater Color Splash Dash is an extra special event to me since it allows me to work with our CF families while having fun in America's favorite town [aka STILLWATER].
Executive DirectorCelia has been with the Cystic Fibrosis Foundation for 11 years. The CF families within our community are very dear to her heart and she anxiously awaits for a cure to be found for every person affected by CF.
Lead DesignerUntil my nephew Aden was born in 2012 I didn't know much about Cystic Fibrosis and the many children and adults it affected. Since then I have made it one of my life's goals to help my family and all the others in the fight to find a cure. Stillwater Color Splash Dash is just one of the many fundraisers I look forward to volunteering my time to each year. Let's all join in the fight to make CF stand for "cure found"